Quality of life among caregivers of thalassaemic children, attending at Thalassaemia control unit of a rural tertiary care hospital, in a sub-Himalayan district of West Bengal

Thalassaemia is a disease of abnormal development red blood cells which manifests as anaemia. This chronic may cause mental, social, financial burdens on the families, care givers and also health system. To assess quality life (QOL) caregivers thalassaemic children to identify predictors their physical mental health. Institution based descriptive cross-sectional study conducted in Control Unit (TCU) North Bengal Medical College (NBMC) from December 2018 April 2019. Total 136 (≤12 years) with thalassaemia were included by complete enumeration method. Physical reported Short Form-36 (SF-36) Health Survey. Collected data entered into MS-Excel, analysed help SPSS (Version 22). Mean age was 34.3 (SD ± 1.4 years). Most female (89%) had educational qualification up Primary school (45.6%). Majority (70.6%) mothers children. participants (60.3%) favourable Component Summary (PCS) but 64.7% unfavourable Mental component (MCS). Educational status found be predictor for PCS relationship child MCS. Counselling, psychotherapy, social support family members or community involvement full participation should emphasized reduce stigma related thalassaemia.